Being Sam Frears

This is Sam Frears'' story.

This is also the story of an actor, a rock-climber and a man born with an extremely rare genetic disorder only affecting Ashkenazi Jews. Sam was supposed to live to the age of 5. In February, he celebrated his 40th birthday.

Challenged by blindness and a body under great stress, Sam Frears is trying to live an ordinary life under extraordinary circumstances His struggles ...