Rubber Band Girl
Marfan Syndrome, or “Rubber Band Disease,” as it is commonly called, has taken the lives of too many, too soon. A disease that attacks the ligaments of the body, it is associated with heart and vision problems, extreme flexibility of the joints, and, its most noticeable feature, excessive height.
In this inspiring memoir, Jennifer Nielson recounts her journey as the mother of Hadley, a beautif...
Marfan Syndrome, or “Rubber Band Disease,” as it is commonly called, has taken the lives of too many, too soon. A disease that attacks the ligaments of the body, it is associated with heart and vision problems, extreme flexibility of the joints, and, its most noticeable feature, excessive height.
In this inspiring memoir, Jennifer Nielson recounts her journey as the mother of Hadley, a beautif...
