Social Life of Rare Disorders
This book is the first comprehensive study of rare disorders from a historical, political, and social perspective. It is estimated that around 300 million people worldwide live with a rare disorder today. What do patients and associations concerned by one of the 7,000 known rare diseases have in common, and what does rarity mean to them? How did rare disorders become a mainstream category in publi...
This book is the first comprehensive study of rare disorders from a historical, political, and social perspective. It is estimated that around 300 million people worldwide live with a rare disorder today. What do patients and associations concerned by one of the 7,000 known rare diseases have in common, and what does rarity mean to them? How did rare disorders become a mainstream category in publi...
